More Pulmonary Hypertension Patients Have Access to Pulmonary Hypertension Association-Accredited Treatment Facilities

PHA Pulmonary Hypertension Care Centers

Committed to providing access to quality care for people living with pulmonary hypertension (PH), the Pulmonary Hypertension Association (PHA) continues to roll out its Pulmonary Hypertension Care Centers (PHCC) accreditation program.

The Pulmonary Hypertension Programs at Cincinnati Children’s Hospital Medical Center in Cincinnati, Ohio, and Henry Ford Hospital in Detroit, Mich. have recently received the PHCC Center of Comprehensive Care (CCC) accreditation. Since PHA’s accreditation program launched in 2014, 54 programs in 28 states have received PHCC accreditation. The total includes 43 adult and eight pediatric CCCs along with three adult Regional Clinical Programs (RCPs).

PH is a progressive, life-threatening, debilitating disease resulting in high blood pressure of the lungs due to narrowing of the pulmonary arteries. It forces the right side of the heart to pump so hard to move blood into the lungs that it can lead to heart failure. Symptoms are non-specific and include shortness of breath, fatigue and chest pain. Because patients go months, sometimes years, believing they have something other than PH, most patients are ultimately diagnosed with an advanced form of the disease. But early and accurate diagnosis, quality care and appropriate treatments available for two forms of PH — pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH) — can extend and improve the quality of life for many patients.

PHA PHCC program administrators say that as the PHCC quality improvement initiative receives a steady flow of applications from interested programs throughout the country its focus remains true to the goal of raising the overall quality of care and outcomes in PH patients. To this end, PHA encourages all accredited sites to participate in the program’s PHA Registry (PHAR). The PHAR is a multi-center, prospective, observational registry of newly evaluated patients diagnosed at accredited centers in the U.S. with PAH or CTEPH. PHAR-participating centers collect baseline information when a patient is initially evaluated and follow-up data at approximately six-month intervals. The primary goal of the PHAR is to measure and improve…

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