American Medical ID Partners with Marfan Foundation to Raise Awareness of Rare Condition

Leading medical ID manufacturer, American Medical ID has recently partnered with The Marfan Foundation to help raise awareness of Marfan syndrome and related disorders, which put people at risk for life-threatening cardiovascular emergencies. The partnership makes medical alert jewelry such as Marfan awareness bracelets and necklaces more accessible to people living with these potentially fatal conditions.

It is estimated that 200,000 people in the US are living with Marfan syndrome and related connective tissue disorders. Experts estimate that half of the people living with these conditions do not know they have it and are at risk of a sudden early death from a tear in their aorta, the large artery that takes blood away from the heart.

“Medical ID bracelets are an important tool in helping people get appropriate evaluation and treatment in an emergency situation, when time is of the essence and the patient may not be able to communicate his or her medical history,” said Jan Lynch, MSN, RN, Director of The Marfan Foundation’s Help & Resource Center. “The importance of medical ID jewelry is amplified further for our patient community because aortic dissection may not be the first problem that emergency personnel think of, especially in individuals who may be younger and – on the outside – appear to be healthy. Emergency healthcare providers are accustomed to looking for medical ID jewelry; having a bracelet that indicates the risk of aortic dissection can expedite life-saving treatment.”

Quick and efficient diagnosis and treatment of aortic dissection is critical, and a medical ID jewelry is a simple yet effective way to self-advocate and alert others about the risks an individual faces. In an emergency that renders a person unconscious or unable to speak (i.e., aortic tear or rupture), a custom engraved medical ID lets emergency responders know that the individual lives with a medical problem that puts them at risk and other essential medical information, including current prescriptions. As a result, medical IDs help avoid drug interaction and treatments that are not suitable and may cause complications for people living with Marfan syndrome. Wearing a medical ID bracelet or necklace helps ensure individuals receive the right diagnosis and precise treatment in a timely fashion.


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